Tuesday, September 16, 2014

Lupron? Hysterectomy? I need your opinions and feedback, please!

Okay, I'm 48 years old now (nope, my dream of a child never came true. I still don't understand the whys. It hurts to think about sometimes, but I am more accepting of it now. I still cry from time to time.) and last month's period was horrible. The problem is, I am no longer under the care of my wonderful Napro doctor Dr. C. He closed his medical office to take another position. There are no Napro doctors or any Catholic doctors in my area. I had my last visit with Dr. C two weeks before he left at the end of August. He gave me a prescription for progesterone from the Pope John Institute in Omaha, NE but I have no idea how to measure out and take this progesterone prescription. He also ordered an ultrasound, on my request, but was unable to go over the results with me. I needed to schedule an appointment with my primary physician here in my city. I made an appointment and learned that my bi-lateral cysts are back for the third time, the right cyst is hemoglobic (?!) and bigger than the left one, and I need to go see a new GYN. Not having much of a choice, I opted to see a GYN who has a great personality and bedside manner, but she is not Catholic, has a bunch of magazines in her office promoting contraceptives, and she knows nothing about Napro. Of course she recommended a hysterectomy, but told me I needed "cleaning out" before such a surgery is done. She recommended I try the Lupron shot and along with it, she would prescribe the estrogen. She told me that the new finding is that patients with endometriosis have a higher risk of ovarian cancer. I was also told that no, estrogen will not encourage cancer, but if estrogen is taken with progesterone, than yes, that will make my chances of getting cancer higher. Is that really true? Has anybody tried Lupron? What are the side effects of Lupron? Do they last long after the Lupron shot wears off?

I am not sure what to do. Hysterectomy? Try the Lupron shot for three months and see what happens? Or just wait until age 51 when I probably will be in Menopause, which was her guess. I've been having signs of pre-menopause since my second surgery in '09: cycles skipping, getting longer, light periods, less cramping, feeling hot in the middle of the night, ect. A few times over the last year I've had horrible pain during my period, which used to be my normal. My last period was really horrible especially on day 3. The prescription for the Lupron shot and estrogen was already special ordered, but I have not been given it yet. I'm trying to gather some information and decide what to do. I'd really appreciate any thoughts, concerns, feedback, ect. Thank you so much! Wish we had the $$ so I could travel to have a Napro trained GYN consultation and possible surgery, but that is impossible right now. I feel stuck. I do not know what to do. The truth is, I'd really like to deal with this naturally, BUT those doctors keep trying to scare me that I might develop ovarian cancer due to the endometriosis. I also feel so tired of developing these stupid ovarian cysts, the fibroids, having the pain (not even a dumb motrin 800 took away the pain last period!),ect. over and over again. So tired of the problems, the pain, and not feeling well. I want to be done with this especially since there is basically almost no hope of my ever being able to have a baby naturally. I feel almost done. Can anybody else relate? Do you understand?

Also, if anybody has had an hysterectomy, I'd love to hear from you. How long did it take you to recover? Are you on any hormone treatments?

Thank you so much in advance! I really appreciate it.

May God Bless you all. You are all in my thoughts and prayers!



Amy @ This Cross I Embrace said...

You may find The Misfit's thoughts on starting Lupron particularly helpful in this case. I don't know if I have any specific advice, since this is such a personal decision, but I think you should pray about it and decide what is the option that sits the best with you.

Julie said...

I had a hysterectomy by Dr Yeung at SLU Center for Endometriosis 13 days ago. Life changing! Best doc in the world! Catholic. NaPro. And top in country for endo!
It was a long 17 years of waiting for this life saving surgery. It is such a personal decision. Made between Dr Yeung, my husband, my pastor and myself. So much info needs to be thought about. Best option for me, but not for everyone.
See if you insurance covers his hospital and practice before you rule it out. We paid $6000 (well, we will be paying that bill off over the next year) and it was worth every penny to travel and get the best doc ever!

LifeHopes said...

Hi Hail Mary, I am so sorry you can't access my blog. Please email me at lifehopesnow@gmail.com
and I will add you.
I will pray for you in your discernment about what to do regarding Lupron, etc.

Anonymous said...

I'm glad that you updated us on your journey. I have often thought about you and wondered how you were. I've read your blog from the beginning.

I'm sorry that the Lord did not bless you with a biological child. I too am still childless, and it is the worst emotional pain I've had to endure in my life. We will get through it. You are in my prayers.

I am wondering why you and your husband chose not to adopt?

I have not heard good things about Lupron side effects. I will pray for your discernment.